Born: December 14, 1961 @ Good Samaritan Hospital, West Palm Beach Florida, USA
Height: About 6 ft.
Weight: Slim, lithe scrawny, take your pick.
Hair: Dark. A few gray whiskers starting to creep in.
Eyes: Green
Current Residence: Melbourne, FL
No, the picture is not of me. It is my dog. His name was CJ. He died
a few years back, basically of old age. I will answer to "CJ", but
usually go by "Chris".
The Work / School Thing
I was born and raised in the suburban hell that is south Florida. My
family moved to Montana for about three years while I was a teenager. Then
we moved back to Florida. I lived here until I went to graduate school
at the University of Oregon, then back to Florida. I got sick of some things
in Florida, so I moved to Yellowstone National Park for a while (see my
Yellowstone
pages), then got sick of Yellowstone, so back to Florida again. Some
day I might settle down. Or not.
If you are interested in seeing my resume then
follow the link.
Stuff I Like
I like gardening, especially growing orchids.
I also like carnivorous plants, weird tropical vegetables, bromeliads,
anything strange or unusual. As long as it is in the plant kingdom I would
probably like to grow it.
I like to take pictures.
I like to go to the beach, go swimming or body surfing in the bathtub
warm Florida ocean, and bake in the sun. I manage to get there every now
and then, but usually not as long as I like.
I like my doggies and kitties and birdies.
I like playing with my computer, seeing what I can make it do.
I like traveling and camping. Unfortunately, like with the beach, I
haven't done very much camping lately.
I like to cook and eat good food.
I like to listen to rock music, especially punk. Like with the plants,
as long as it is strange and unusual I would probably like it. My long
time companion James has got me to where I even like baroque organ music
and other classical stuff. He doesn't like it when I compare Bach to the
Ramones. He just can't see the similarities.
What I Have Been Doing Lately
This is James.
I had been with James for about 13 years. We had an upholstery shop
together, and it was doing very well. James started drinking heavily, so
I left, went to Yellowstone for three years. I got dissatisfied with working
there and lonely, and James claimed he had quit drinking ( the only out
and out lie to me I ever caught him in ), so I decided to give it another
try with him. Got back to Florida in October '97 and things were going
pretty well. Then James got sick.
James has AIDS. He had known he had the virus since shortly after
I moved to Yellowstone in the fall of '95, but had never been sick from
it. Then in May '98 he suddenly couldn't talk very well. At first we thought
it might be a stroke, then the diagnosis was toxoplasmosis. Now the diagnosis
is PML, Progressive Multifocal Leukoencephalopathy.
This is a really bad disease that destroys the brain. It is caused by a
virus that most people already have. All sorts of nasty things can happen
to a person when their immune system is damaged. There are no proven treatments,
never mind a cure, and it is almost always fatal.
So lately I have been struggling to keep our little household going,
and James out of a nursing home. It's not easy. It is emotionally exhausting.
It's just not easy watching someone you care about be so sick. It is difficult
to be tied to one person, to have to watch over them and help them all
the time. It can be physically exhausting, like when I was trying to
work in our shop and James was acting like a 130 pound toddler, into everything,
on the go day and night, but one who liked to chain smoke, play with lighters,
and could unlock all the doors. He has calmed down a lot since then, and
I haven't had to worry about work much since I haven't had much lately.
But it can be rewarding in it's own way. I have never had to take care
of someone before, never had anyone depending on me, never wanted to do
those things. I am learning about that. In a strange sort of way it's not
so bad, not as bad as I thought it was. I'm learning that I can do things
I thought would be too difficult to do. I am learning not to worry so much.
Besides, I don't really have a choice. The little feller has done too much
for me over the years for me to turn my back on him now.
Actually James is doing so much better lately. I didn't want to
take that last paragraph out, but James has been steadily improving for
at least four years now. He can do a little more each week.
He still can't talk, that makes thing difficult. Sometimes the "experts"
still say he is dying, and that can cause problems sometimes, and it's
true he does still have AIDS, but I figure that it is now my job to help
him get back to being able to live a fully independent life on his own
if he wants to or needs to. It's slow and can be very frustrating
for him, but it looks like I will have him around at least a few more years,
who knows how long really. He thinks he will get his driver's license
and move to Tennessee. I doubt that, but then again i didn't think
he would be able to ride his bike either.
OK, James got his wish to move to Tennessee in January 2006. By all reports he is doing quite well. Go James, and good luck to you.
So the lesson is:
You never know. Things might actually turn out not so bad every
now and then.
Take care people. Live your lives good.
CJ
e-mail Chris Johnson
(j.charles@lycos.com)